Survivor Passport

Childhood Cancer Survivors face late and long-term sideeffects psychosocial, employment, and insurance issues and often lack consistent long-term follow-up care.At present in developing countries like India survivorship services are an underdeveloped area. KidsCan Konnect- Survivor group (KCK) of Cankids…Kidscan, strives to improve services available to survivors. In order to address the systemic service and knowledge gap experienced by our survivors, KCK has developed an innovative survivor passport program to educate survivors about late effects, and help them with proper documentation and the need for regular follow-up. Late effects in childhood cancer survivors may affect the following:

Organs, tissues, and body function

Growth and development

Reproductive health

Mood, feelings, and actions

Thinking, learning, and memory

Occupation and Employment

Social and psychological adjustment

Risk of second cancers


There are three important factors that affect the risk of late effects. Many childhood cancer survivors will have late effects. The risk of late effects depends on factors related to the tumor, treatment, and patient. These include the following:

Treatment-related factors

Type of surgery

Chemotherapy type, dose, and schedule

Type of radiation therapy,part of body treated, & dose

Stem cell transplant

Use of two or more types of treatment at the same time

Blood product transfusion

Chronic graft-versus-host disease

Complications during treatment

Patient-related factors

Child's gender

Health problems before being diagnosed with cancer

Child’s age and developmental stage

Length of time since diagnosis and treatment

Changes in hormone levels

The ability of affected healthy tissue to repair itself

Certain changes in the child's genes

Family history of cancer or other conditions

Health habits

Tumor-related factors

Type of cancer

Where the tumor is in the body

How the tumor affects the way, tissues and organs work